Surviving Low-Grade Glioma Brain Tumor for 9 Years Since Age 8

Kania was diagnosed with a brain tumour in August 2014 at the age of 8, presenting with symptoms of headaches, nausea, vomiting, and seizures. A CT scan revealed a 3 cm mass in her thalamus, which had spread to the right mesencephalon, suspected to be a low-grade glioma type of cancer. Due to the location of the tumour, surgery and the installation of a brain fluid tube (VP shunt) were considered too risky. Kania's father turned to ECCT, which was recommended by her doctors and the Lavender cancer survivor community in early 2016.

The tumour mass was directly connected to the brain's fluid drainage pathway (fourth ventricle), and allowed easy elimination through the cerebrospinal fluid pathway and the intestine. In the first month of use, Kania experienced symptoms such as mild leg seizures and tingling sensation stimulation around her leg nerves but Kania's condition improved relatively quickly, with ECCT helping to alleviate her balance, motor, and vision problems. After six months, her symptoms had almost disappeared. Her seizures and vomiting stopped, and her overall condition slowly resume normal. Her CT scan after two years showed a decrease in tumour mass volume by half, and Kania's condition continues to improve. Her latest brain scan in February 2023 is approaching normal condition, although there is still some pressure on the back of her brain, which may be correlated with pressure on her eye nerves in the visual cortex due to fluid accumulation that may still be present. Kania is now 17 years old, attending school, and making good progress in her studies.

This case describes an individual’s documented journey and is provided for educational and informational purposes only. It does not constitute medical advice and should not be used as a substitute for professional medical consultation, diagnosis, or standard-of-care treatment. Individual outcomes may vary, and this case should not be interpreted as a guarantee or indication that any particular outcome, response, improvement, or result will occur in another individual.